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could anyone pls just advise me on ways of dealing with these symptoms because i really have had enough.my gastro appointment isnt untill the end of next month. Thu, April 22, 2010 @ AM today i was turned away by the red cross and was told by them at the donation place and at there 1-800 number that the FDA said that they could not take blood from a person who has Hemochromatosis I was not there for theraputic blood letting just for the two to three times a year blood letting for control I have sent a e-mail to the FDA to ask if that is true becouse there website says that nothing is wrong with our blood and that there has been no (i repeat no) adverse effects from enyone getting blood from someone wit Heriditary Hemochromatosis Tue, April 27, 2010 @ PM 56 yrs and recently diagnosed with HH .Also, my hair is falling out by the handfull every day. Tue, April 20, 2010 @ PM hi all, i was diagnosed last year with having iron deficiency anemia.i dont know to much about it and i sure dont want to pester my doctor about it.
The reason your body wants iron is because it is either iron deficient or some gene mutation is doing what it is programmed to do: load iron. And when I eat to much food that is iron rich I often feel very weak and incedibly tired. But would like to learn more about this and even if there is an actual name for what I have. She had Pernicious Anemia, I think that's when the body does not absorb B12...which may be linked to the absorption of iron.I just don't know what to do about the other "High" numbers as i cannot seem to get them to go down. The doctor that i see for this does not seem to be very knowlegable of HH either, which does not help.Thanks, JT Mon, April 19, 2010 @ PM I was diagnosed in November 2009 with HH, genetic, homozygous for the C282(? My ferritin is currently 2600, serum saturation of 90% and elevated iron and liver values.back in Dec is was low however she wasnt to worry about it., now its back up however my ERYTHROPOIETIN test came back low but not to low.one doctor doesnt seem worry however the stomach doctor wants me to have it checked out.